Privacy Policy

Effective Date: June 2, 2025

The Live Donor Project (LDP) respects your privacy and is committed to protecting the personal information you share with us. This Privacy Policy explains how we collect, use, and safeguard your information when you visit our website.

1. Information We Collect

When you use [www.livedonorproject.org] (the “Website”), we may collect the following:

A. Personal Information (if voluntarily submitted):

  • Name
  • Email address
  • Phone number
  • Mailing address
  • Donation form or contact form submissions
  • Responses to surveys, event registrations, or volunteer sign-ups
 

B. Non-Personal Information:

  • Browser type and version
  • IP address
  • Pages visited and time spent
  • Referring site or search term

We use Google Analytics and similar tools to collect and analyze non-identifiable visitor data to improve our content and user experience.

2. How We Use Your Information

The information we collect is used to:

  • Respond to your inquiries or requests
  • Share updates about LDP events, news, and volunteer opportunities
  • Process and acknowledge donations
  • Send newsletters or educational content (with your consent)
  • Improve our website functionality and outreach efforts
 

We do not sell, rent, or share your personal information with third parties for marketing purposes.

3. How We Protect Your Information

We implement reasonable administrative, technical, and physical safeguards to protect your data. However, please note that no internet-based platform is 100% secure.

4. Cookies

Our site uses cookies to enhance your experience. Cookies are small files placed on your device that help us understand how visitors interact with our website. You may disable cookies through your browser settings, though this may affect site functionality.

5. Third-Party Links

Our website may include links to third-party sites. We are not responsible for the privacy policies or practices of those sites. We encourage you to review their policies before sharing any personal information.

6. Email Communications

If you sign up to receive emails from LDP, you can unsubscribe at any time using the link at the bottom of our emails.

7. Children’s Privacy

We are committed to protecting the privacy of individuals under the age of 18.

The Live Donor Project’s website and services are intended for general audiences and not specifically directed to individuals under 18. We do not knowingly collect personal information from individuals under 18 without parental or guardian consent.

If we learn that we have collected personal information from someone under 18 without proper authorization, we will delete it promptly. Parents or guardians who believe their child has submitted information to us may contact us using the details below.

8. Changes to This Policy

We may update this policy from time to time. Any changes will be posted on this page with an updated effective date.

9. Contact Us

If you have any questions or concerns about this Privacy Policy, please contact:

The Live Donor Project
info@thelivedonorproject.org
412-219-2024
920 Fort Duquesne Blvd.

Pittsburgh, PA 15222
www.livedonorproject.org

Privacy Policy for Share Your Story Participants

Effective Date: June 2, 2025

The Live Donor Project (LDP) is committed to protecting your privacy and ensuring transparency in how your personal information is collected, used, and shared when you choose to participate in our Share Your Story initiative.

This Privacy Policy outlines how we manage the information you provide to us and the rights you have regarding your data.

1. Information We Collect

When you choose to share your story on our website, we may collect the following types of information:

  • Personal Information: Your name, email address, city/state, age (optional), and contact preferences.
  • Health-Related Information: Basic medical information relevant to your donor need (e.g., kidney or liver, transplant status).
  • Media & Story Content: Photos, videos, written stories, and updates you voluntarily submit.
  • Transplant Center Information: If applicable, details about your transplant center or referral process.

We collect this information directly from you when you submit it through our website forms or communicate with us.

2. How We Use Your Information

We use your information to:

  • Create a personalized web page on The Live Donor Project website to share your story and need for a living donor.
  • Educate the public and potential donors about living donation.
  • Connect interested individuals to your transplant center or hospital.
  • Promote awareness and engagement through LDP educational and advocacy initiatives.
  • Share your story across social media and awareness platforms, only with your permission.

We will not use your information for purposes other than those described in this policy without your consent.

3. Consent and Control

You will be asked to provide consent before your story and any personal content are published on our website or shared externally.

  • Consent may be provided through an online form, email confirmation, or other clearly documented method.
  • You may withdraw or update your consent at any time by contacting us at [insert contact email].
  • Upon request, we will remove or update your page and any associated content.
  • You may choose which information you want displayed publicly. We will never share your contact details or sensitive medical information without your clear permission.

4. Sharing Your Information

We may share your information with:

  • Your designated transplant center for the purposes of donor screening or coordination.
  • Media or promotional partners only if you have granted permission.
  • LDP staff and volunteers responsible for managing the Share Your Story platform.

We do not sell or rent your information to any third parties.

5. Data Security

We take data protection seriously and use appropriate safeguards to protect the information you provide, including:

  • Secure hosting environments.
  • Access control for authorized LDP staff only.
  • Regular reviews of privacy practices.

6. Compliance with Laws

We comply with applicable federal and state privacy laws, including:

  • Health Insurance Portability and Accountability Act (HIPAA): We handle health-related information in accordance with HIPAA regulations, ensuring the confidentiality and security of your protected health information (PHI).
  • Pennsylvania State Laws: We adhere to Pennsylvania’s privacy laws and regulations concerning the collection, use, and disclosure of personal information.

7. Minors

If you are under 18, a parent or legal guardian must complete and approve your participation in the Share Your Story program.

8. Contact Us

If you have questions or concerns about your information or this privacy policy, please contact:

The Live Donor Project

920 Fort Duquesne Blvd.

Pittsburgh, PA 15222

info@thelivedonorproject.org

412-219-2024

This policy may be updated from time to time. Any changes will be posted on our website with a revised effective date.